Congress Incentivizes Rare Disease Research. Big Pharma Exploits It.

After three years on prednisone, a steroid not recommended for long-term use, Amy G. saw a new specialist. She had been diagnosed with EGPA, a particularly rare type of the autoimmune disorder vasculitis, which causes blood vessels to be inflamed. When it’s not properly managed, people with EGPA—roughly five in every 200,000 adults—risk potentially fatal complications, […]